Well, they have changed what they are going to do. We have had three negative cultures, meaning they haven't gotten anything to grow. But they said that they have changed their mind what the first culture was. Since they haven't been able to diagnose it, they aren't sure they haven't fixed it with their antibiotics. So, since they can't diagnose it, they are sending it out to the specialists and we have to stay here until at least Thursday. Hopefully, by that time, they will have diagnosed what they think she has.
Fiona, on the other hand, is doing wonderfully. She is slowly getting rid of her cough. She has been riding her trike up and down the halls, this time, thankfully, without an IV pole. One time, when she was hospitalized before, I went home to take a shower, came back and things were in an uproar. Hubby, unaccustomed to her, or the treadmill, couldn't keep up with her on the trike and her needle got popped out of her port-a-cath. I still joke that I couldn't leave them alone for a few minutes without something happening.
The hospital had a teddy bear clinic where they handed out teddy bears and then we got to take her through various specialties of the hospital. The X-ray department was there to take a picture of her 'guts' and the ER helped Fiona put a bandaid on her. That was a nice time killer.
I wish I could access the Wifi in our room. Then she could just lay in bed all day and play her Webkinz. And she would too!
Stay at home mom caring for a lymphoma girl and trying hard to maintain sanity and normalcy for the big sister and husband!
5 comments:
Dang it. That just doesn't seem fair. I am so sorry that you are having to spend so much time in the hospital.
It's great nothing is growing!
It is not fun at all to be in the hospital with nothing to do!
Have you checked out ChemoAngels.net? We have 2 "angels" that send something in the mail once a week. It has been great for Eric!
Oh man, hospital stays are downright hard to get through in every way. Sorry. I'm glad you know what it's like to cry over your daughter's blankie :)
Just wanted to let you know I am thinking of you. I hope you are out of there soon.
And by the way, wow! on your BofM reading. You are amazing!!
Keep us posted.
Hey J, they don't do chemo angels for kids that are in maintenance. We do SuperSibs, though, and Buttercup loves it!
Kerri- losing her blankie was just adding insult to injury. I didn't tell her we lost it, but I felt like I was lying every time I looked at her. I honestly cried over it, though.
M&M, I read about the 97 day challenge and thought, I could not do that! Then our Stake challenged us to it in 40 days and I thought, sure I can do that. Go figure.
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