When Fiona was diagnosed, I remember her oncologist saying that parents get fed up with every thing they have to do. I just thought, how can they do that? It's my baby I am saving. Well, I am fed up! The trip down to Texas Children's is long enough. The wait in the various staging areas is horrendous. It's like visiting the ER every time. We spent 45 minutes waiting to be called back and then she was accessed (that means they stuck a needle in her port). Then we went to the infusion waiting area where we waited for at least another 30 minutes before they brought us back to the exam room. Where we waited another 45 minutes for the doctor to come in. The doctor was with us for about 15 minutes. Then we waited another 45 minutes for the already ordered chemo to come out. And this was a quick day.
I can't believe she has only 4 more chemo appointments before it's all over. We have had countless appointments, thousands of pills, over a month in hospitalizations, numberless tummy rubs, junk food runs, items bought for bribery. I am just so ready for it to be over. I want her to be a normal little kid again. I asked her today if she remembered a time before she was diagnosed. She said she did. I am glad. She was awfully little. I marvel at the leaps and bounds she has made in her maturity. Her understanding and comprehension of some pretty difficult ideas has been amazing. Hubby and I have always been honest with her. I would tell her that I will always been honest with her. That way I can reassure her when I say something's not going to hurt that it actually won't. And she will believe me. I say, she's a kid, she's not an idiot.
Now we are going to have a quiet weekend where she can hang out in my bubbly tub, watch some shows and try to ignore what's going on her body.
3 comments:
We are having the same week. I'll get mine posted when and if I get done catching up on blogs!
I love that their are wonderful doctors and nurses that have dedicated years to their professions. I just wish they didn't think the patient needed to dedicate years in waiting for them!
And we'll all do the happy dance with you!
Wouldn't it be great if all the waiting could be reduced? For me the frustration often wasn't the procedure as much as it was the constant waiting. That's a lot to ask of a little kid. I'm sooooooo glad you can see the light at the end of this tunnel!!!
Post a Comment