And We're Back

I had to call the doctor today to ask about Fiona's results. I hate doing that. I am so not the squeaky wheel. Unfortunately the silent wheel, especially in the medical world, rarely gets rewarded. We were always the room that got ignored when the social worker, volunteer, etc would make their rounds. Fiona and I were sort of an island to ourselves and that isn't always the best thing. Anyway, so our doctor had to call the lab, get it faxed to them and then fax it to Fiona's oncologist. I suppose we could've driven all of the way down to Texas Children's on Friday and gotten the results right away, but ugh...It's not worth stepping into the time stopping vortex that is the Children's Cancer Center.
Anyway, after waiting for the doctor to call and talk about results, we finally heard back. Fiona's labs are back to normal, normal being relative. My Mom, Fiona and I all have Gilbert's Syndrome, which doesn't sound like much (pronounce it the way the French probably do, Gil-bear's). But it makes for higher liver enzymes for no particular reason. Once again, the family genetic lotto comes knocking at my door. So, her enzymes are back to where they were before and she is back to her nightly medicine. I have to say she really enjoyed being able to eat whenever the fancy struck her. That's a good thing the week after steroids.
Now, I have to call the surgeon and schedule her port being removed. She's understandably nervous about that, she didn't feel very good getting it put in. Of course, back then, she had had a biopsy in her chest and that was awful. She was still stuck in bed and I had to help her out to go potty and every time I did, I would inadvertently squeeze her chest and make her cry. A month later she was getting her port put in and I have the saddest picture of that. When I can hunt it down, I will tell you about the different ways they managed to get blood out of (and into her).