Fiona took her last steroid dose today. How weird is that? Probably a bit more weird to me than to you. I remember getting the roadmap of her protocol two years ago and turning to TD and saying, two years from now, I am going to take the entire school year off 2008-09. It's wild how quickly we absorbed our new duties. It was normal to look at the week and think, well, we have to be at Doernbecher's from 10am to about 6pm on Thursday and then Friday we will have to head back up there because Fiona will need a blood transfusion, so that will probably take us 9am to 3pm. So, I will have to do the laundry on Monday, grocery shopping and vacuuming on Tuesday, the bathrooms on Wednesday, we have day care for Buttercup on Thursday and Friday, I should make some extra meals for those days, etc....that would be how my days would go. I told TD, it was like having an extra full time job and a half. The half would be the financial aspect. Keeping our receipts for our flexible spending account, arguing with the insurance that we did indeed have prior approval for a particular test or procedure. Remembering that Fiona would have to be NPO (no food or water) for Thursday because she would be having a back pokie. We soon got rid of that, she didn't like not being able to eat, especially on steroids, so she told them she was cool with staying awake for the pokes. What a brave little 4 year old. Thank heavens for dopey medicines.
It's wild to think all of this extra responsibility will be gone. I can remember thinking of our responsibilities as more of a prison sentence than anything. Something we had to get through and now we're done and I can't hardly believe it. People have been telling me that all sorts of emotions might arise now that we are done, TD has been waiting for me to have the mental breakdown he has been battling. I just don't feel it coming. It was something I had to do and I did it. Or maybe having done something like it myself, I knew we could do this. Or maybe the solid faith I have always had, let me know, no matter what, everything will eventually be all right.
Thanks for hanging out with me and giving me all of your helpful comments and visits. This blog has really helped me. I won't change the name because I will always be a cancer mom and things won't entirely be over for another 3 years. That's how long we will be regularly monitoring things.
8 comments:
I'm glad to hear you're continuing the blog! Congrats on making it through the last two years and THANK YOU for all your posts. I don't have the exact same problems, but we all gain strength from learning how others deal with trials, and WOW, have you dealt! Great job, lcm!
Please say congrats and great job to Fiona as well (and everyone in your cute family). You all have been nothing short of heroic in your own ways as you have handled whatever came your way. Well done!
I am so thrilled for your family. It is such a huge milestone.
If you have tons of pictures, a photo book of the last 2 years may be a fun project. If you upload to Kodak Gallery they have lots of cute books and you can add some words, they print and send it to you. Way easier than scrapbooking but can be pricey.
End of an era, indeed. I am just amazed at your faith, attitude and perseverance. You and Fiona are both fighters.
I have been really bad about replying to comments and I am going to try and work on that. Ranell, we so appreciated everything you did for us while we were in Sherwood. Juli, since my mom never wanted to talk about my chemo time, I wanted to do something different for Fiona. She has a chemo scrapbook, a bright red one, that we are slowly working on. Jadie, thanks so much for showing up on the blog and the wonderful hat party you threw Fiona. I still tell people about that.
wow! what a momentous occasion! i'm so glad that you've made it here!
Happy dance, happy dance!
See you tonight for the Party!! Can't wait to see Giggle Boxes face! She is just precious.
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